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LUPUS UK

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Internal tremor (buzz/jangles)

Hi everyone - wondering if this is something others here experience - or whether...

What would you most like to tell rheumatologists?

What would you most like to tell rheumatologists? LUPUS UK are presenting at a ...
Debbie_kinsey profile image
Administrator

Not so great British summer !

hi all I just wanted to make you smile on a very windy 🌬️ gloomy Monday in So...
Tiggywoos profile image

Mam I might need a bath 🛁

Finlay loves a muddy puddle 🫣😫 I hope you all have a good week ahead. Life se...

Never ending circle

Morning everyone, just looking for advice and to vent a little. I have posted a ...
Mctd profile image

Golden Cuties

Hello EveryoneJust thought i'd pop up to show you these special golden cuties. N...
misty14 profile image

can ANA turn negative?

Hi everyone, I’m a total newb to this. I have just been diagnosed with SLE and a...

It’s Mira Monday 🐶❤️

Hi folks , it’s Mira,s 4th Birthday tomorrow, for anyone who is not familiar wit...
svfarmer profile image

Just Chillin.......

This is Hugo chillin out while he waits to go out in the wind and rain this morn...

Steroids 30mg

Hey friends, I’m going through rough time. I have a chest infection which happen...

Notes for upcoming GP appointment

Apologies as this is a long read 🙃 I've got a GP appointment booked for 9th May...
Wispymisty profile image

hydroxychloroquine?

hi been told by my rheumatologist I need to start taking hydroxychloroquine and ...

Turmeric curcumin

anyone taking this as a supplement and any advice as mixed reviews online . Than...
Johnnyfay profile image

Hi to everyone.

I feel lonely, sad ,weak and useless.I feel like to give up
AddyT profile image

Four legged Cutie

Hello everyoneJust thought I'd pop in to show you this special cutie foal born a...
misty14 profile image

Scelerosing Mesenteritis and Walking sticks

hi folks it’s been a long while since I’ve last posted- I have been in and out o...
svfarmer profile image

Secondary Sjogrens

Morning all. I have recently been diagnosed with secondary sjogrens and wonderin...
Alexia01 profile image

The coexistence of UCTD/SLE and Endometriosis/Adenomyosis

Dear Lupies, I hope you are feeling well. 🙏 I wanted to share my recent experie...
Naladog profile image

Feet and legs …..Ever changing symptoms.

Good morning im asking if these symptoms are familiar with anyone or if it’s not...

Need to vent to people who will get it.

As the title says. I'm struggling right now and just wanna cry, but can't becaus...

Cool crutches -Bea & Mira

hi folks just wanted to post a pic of my first ever walking stick - who would ha...
svfarmer profile image

Lupus rash?

I have suffered many different symptoms for a period approaching 15 years. Abo...

Decipher this cholesterol reading please

I know there are plenty of knowledgeable people reading these posts so can you d...

reaction to Spikevax XBB 1.5Moderna

Just want to share that I had the above covid booster on Thursday (2nd May) and ...
Larks0ng profile image

Eyes affected by sunlight

Does anyone know about this.? Another surprise for me. I’ve been feeling w...

Gps don't do ENA blood test ?

This blood test was requested February 2023 from a London Hospital. GPS phoned j...
Sc12Coco profile image

Johnny

just been diagnosed with lupus . I’m 55 and would like advice on how to control ...
Johnnyfay profile image

Malar and/or rosacea?

Hi everyone I wondered whether any members here have both rosacea and a malar fl...
Wispymisty profile image

Borderline ana

Hi 😊 Not sure if this is the right bit. For last 3 years I have extreme tiredn...
Beeekind22 profile image

Facial erythema

Hi.Can anyone recommend any cream or advice on how to calm facial erythema pleas...
heatherose profile image
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