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LUPUS UK blog
Paul_Howard

April's Guest Blog - LUPUS UK London Marathon Runners

Posted by Paul_Howard LUPUS UK
30 Apr 2013

Earlier this month 54 runners took to the streets of London to run the Virgin London Marathon for LUPUS UK. We’re delighted to say that all those that took part managed to finish the run. We’ve given over our blog to a few of our runners this month so that they could tell you about their day. ...

LUPUS UK blog
Paul_Howard

World Lupus Day (May 10th) – 10 ways you can get involved!

Posted by Paul_Howard LUPUS UK
26 Apr 2013

World Lupus Day (May 10th) – How you can get involved!

World Lupus Day is now just two weeks away. We really want to make sure that this is the biggest World Lupus Day ever and it helps educate more people about lupus and also leads to more funds being raised for the charity.

Question
LUPUS UK blog
Paul_Howard

Research study looking for people with SLE that receive MabThera or Methotrexate

Posted by Paul_Howard LUPUS UK
8 Mar 2013

We’ve just been approached by Medicys Limited who are looking for participants for another research study. They are looking to conduct interviews to get a better understanding of experiences and perceptions of SLE and the associated treatments.

They are offering an honorarium ...

LUPUS UK blog
Paul_Howard

March's Guest Blog - Yvonne Norton (Chair of West Midlands Lupus Group, Vice Chair & Trustee of LUPUS UK)

Posted by Paul_Howard LUPUS UK
22 Mar 2013

This month's article has been written by Yvonne Norton. Yvonne is the Chair of the West Midlands lupus support group as well as being the Vice Chair and a Trustee of LUPUS UK. Here's what she had to say;

"LUPUS UK is, I believe, unique in that, apart from a staff ...

LUPUS UK blog
Paul_Howard

“Expert patients” needed to contribute to research design

Posted by Paul_Howard LUPUS UK
15 Mar 2013

We’ve been contacted by Beverly Coghlan, research fellow in Primary Care Medicine at the University of Southampton with details of a research study that needs participants. Please take a look below and contact her if you are interested in helping out.

What’s the purpose of ...

LUPUS UK blog
Paul_Howard

News & Views - Spring 2013 - OUT NOW

Posted by Paul_Howard LUPUS UK
13 Mar 2013

News & Views should be dropping through the door for all LUPUS UK members in the next few days, thanks to our wonderful team of volunteers helping to pack them all into envelopes for us yesterday.

The new issue of News & Views includes;
• An informative article ...

LUPUS UK blog
Paul_Howard

February's Guest Blog - Nicola Daly (Lupus Specialist Nurse)

Posted by Paul_Howard LUPUS UK
28 Feb 2013

This month's article has been written by Nicola Daly who is the Rheumatology Clinical Nurse Specialist at University College London Hospital. She's taken a moment out of her schedule to let you know a bit about her role, projects she is involved in and lupus research. Here's what ...

Community Blog
Jarrod

What now I ask? - politics and medicine

Posted by Jarrod
13 Feb 2013

I am dying in disbelief at the lack of patient care due in part by the awful politics that exists in this countries health system. (NHS and Private alike)

I was admitted to my local hospital with acute jaundice and diagnosed with Autoimmune hepatitis 4 years ago, and recently ...

LUPUS UK blog
Paul_Howard

Research study looking for people with SLE that receive MabThera or Benlysta

Posted by Paul_Howard LUPUS UK
12 Feb 2013

We’ve just been approached by Medicys Limited who are looking for participants for a research study. They are looking to conduct face to face interviews in London to get a better understanding of experiences and perceptions of SLE and the associated treatments.

The face to face ...