Community Blog

Thoughts and personal experiences

lec1990eu

ROMANIA

Posted by lec1990eu
11 hours ago

LUPUSUL SI SUPRAVIETUIREA ESTE UN MOD DE VIATA FORTATA MINISTERUL SANATATII CONDAMNA LA MOARTE PE CEI CU O BOALA CRONICA CARE NU ISI PERMIT UN MINIM TRATAMENT DE INTRETINERE SAU MACAR PENTRU O EVALUARE A EVOLUTIEI BOLII
MACAR ANUALA
SCAPA CINE POATE
EU INCA MAI RESPIR

Angelman

30 years of Lupus........

Posted by Angelman
yesterday

30 years ago I had what I thought was bad influenza. I went back to work but never really recovered. I was so fatigued that I had to lie down during the day at work or else I would have keeled over. I was working in a hostel for people moving out of psychiatric hospital and back into the ...

warfarin

AntiCoagulation Europe (registered charity no 1090250) needs your help with our major new survey

Posted by warfarin
yesterday

AntiCoagulation Europe needs your help with our major new survey.
Please help us by completing our major new survey on peoples experience of being diagnosed with a condition that needs you to take an anticoagulant, and how you feel about the anticoagulation service that you have ...

suebuck56

Burning hands...??

Posted by suebuck56
2 days ago

Does anyone else have 'burning hands' My palms are absolutely burning, left one worse. Ive put it in cold water and it seems to have eased it. A couple of mornings ago when I woke up my left hand felt like it was getting tiny electric shocks...?? (on the palms)

auntyp

im a little bit miffed

Posted by auntyp
2 days ago

there was a women on daybreak the other day who was talking about obesity, she had lost about 10 stone (brill) she named some of the illnesses she had due to being obese, diabetes, arthritis, etc and she also included lupus...my miff is that anyone out there who knows nothing about lupus but ...

Lupdaloop

13yrs later.......

Posted by Lupdaloop
2 days ago

Just had my first Rhuemy appointment ! Only taken 13 years to get there!
The last few months I've been on a serious mission to get to the bottom of my condition/s
Been backwards and forwards to Gp with all my various symptoms over the last 13 years,finally when I moved I ...

lillyanne

life begins at 40!! Yeah right.

Posted by lillyanne
4 days ago

The old saying life begins at 40 is a load of old horse manure! I am now reaching the end of my forties and in this decade, I lost my job, got Lupus, Fibrolmyalgia and various other nasty illnesses. I walk like an old woman and I feel like one most days too. Can't wear high heels or have an ...

madlottie

Preying on the vulnerable?

Posted by madlottie
4 days ago

Like I supsect most people who are experiencing the symptoms we do and are faced with the prospect of a chronic disease, I have been doing lots of internet research. Some helpful....most not. I stumbled upon an American site that suggests that all people with autoimmune disease have this ...

Zulka87

Hello Everyone :)

Posted by Zulka87
5 days ago

I had lupus from 3 years and specially on My face and joints pain . I was thinking that nobody else got that but today first time I find many of groups and people who have the same problem as Me . Its hard to live with that because nobody understands Me . Hope I will meet somebody who will feel ...

tunnah

Help

Posted by tunnah
5 days ago

Hi,
I was diagnosed with fibromyalgia 3 years ago, however I do not believe I have this. My symptoms are more like lupus. Everyday I am fatigued, in pain, I get blood blisters in my throat and mouth, and everyday I come out in a rash! Sorry to sound moany but I am not convinced this is ...

Guidelines

Content on this site does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Views expressed are those of individuals and not of LUPUS UK
Learn more (Opens in new window)

Spread the word!

Invite your friends and followers to find their community on HealthUnlocked!

Recent top bloggers

  1. scoobydoo1 scoobydoo1 (7 posts)
  2. steadilymovingforward steadilymovingforward (7 posts)
  3. flutterby flutterby (4 posts)
  4. lillyanne lillyanne (3 posts)
  5. madlottie madlottie (3 posts)
  6. Paul_Howard Paul_Howard (3 posts)
  7. saranne saranne (2 posts)

* posts in the last 30 days