Good News ? Bad News ?
Hi everyone, I went for Rheumi appointment yesterday, and today I don't feel any wiser even though he said he would like to end my confusion. In June 2011, with first Rheumi, I began treatment for what were 'Lupus Like' symptoms and ANA 1:320, no official diagnosis. With traveling since then (I follow my husband and his work) I have seen 2 Rheumi's and 1 Intern. One Rheumi said I did not have arthritis so was not interested in seeing me again. Intern was pumped with the Lupus idea with ANA 1:1280, but changed his mind when next ANA came back very low. Now, the one I have seen 3 times in last 10 months. Without a good positive ANA he was hesitant about Lupus, then when he got his high positive he felt he had missed my nice rash so wasn't convinced. That brings us to yesterday, which I guess was the day he thought he needed to give me something. He said that he agreed with original Doctor, in that I was displaying "Lupus" symptoms, but he was not ready to label me with SLE. He feels that at this point he can only accept 2 out of 11 for diagnosis (ANA and rash) because the rest of blood work has been negative or normal. He is not considering my urine is off with blood 4+ and trace protein, my sore joints, frozen shoulders, painful thigh muscles, headaches, etc. . . , felt that some of my pain may be stress induced, but - Now for surprise - he said he was willing to say I have SCLE. His plan, which I think we have already been doing, is to treat with Plaquenil and watch and wait, and I assured him that was fine with me. As I told my husband, whatever he names it does not change how I feel, so we just continue on.
OK, that is what I say to my husband, but really, I need you guys! What is the difference? From my quick look about - seems that SCLE and SLE are very closely related, how does he differentiate the two? Thank you for listening to my lead up to a very short question. All comments will be appreciated.