If you haven't already done so please, please ask your doctor to check your vitamin D levels.

Ani-
Posted by Ani-
15 Jan 2013

Hi everyone,

Just thought I would write a quick update. Thank you to everyone who emailed me and asked for a copy of my 'lupus, diet and lifestyle' research paper. Over 50 of you got in touch.

Just wanted to update you on a recently released research paper, which again highlights the importance of getting your vitamin D levels checked. This paper was even more interesting since it was a randomised placebo controlled trial - the paper is long and scientific but basically the outcome found that giving vitamin D supplements to increase levels of serum vitamin D actually lowered inflammatory markers in the body and there was a a tendency toward clinical improvement.

From a personal point of view, I got my vitamin D levels up to 100 nmol/L with supplements and 6 monthly blood tests and it has helped my pain a lot. It isn't a cure but it is a definite help. I did have to ask for the blood test but my doctor was fine about doing it after I had asked. It should be routine for all individuals with any auto-immune condition!

If you want to see the scientific paper for this latest study then click here: www.ncbi.nlm.nih.gov/pubmed...

If you think your doctor won't do a test then print the study and hand it to them. Please do ask to have your vitamin D levels checked. Experts agree that optimally levels should be 75-150 nmol/L (which is 30-60 ng/ml)

Currently I am working on putting all my research into some kind of easy to read leaflet/document and will let you know when this happens.

All the best
Ani xx

If you would like to get in touch with me then you can do so via my website www.nurturewithlove.com

Leave a comment    See 9 comments

9 comments

brave
15 Jan 2013
What great advice ,and very thoughfull,mine was 70 in auastralia ,but that was a year ago ,weve since relocated back to the channel isles ,and im not getting much as im to unwell to spend much time outside :(

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Lg1968
15 Jan 2013
My rheumy check my levels each time I have bloods taken first level was 28! Second level was 52 following a course of adcal plus getting some summer sun. Normal levels are above 50 so she's given me a further course for this winter and has advised my GP to give me a course each week for the winter months as she is in agreement that good levels of vit d improves our immunity. I feel much better since taking these and would advise you to get your levels checked

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letslaugh63
16 Jan 2013
i might be being stupid here again but i thought the sun was bad for lupus/autoimmune

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Heatheric
16 Jan 2013
the sun is (bad for you) but you need sunlight to manufacture vitamin D - that's why, when we are avoiding sunlight, we need to take vitamin D supplements - it works!

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ShannonB
16 Jan 2013
Unsure if still available but I also would like a copy of your report. Is there a way to privately message you with my email address?

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Ani-
16 Jan 2013
Hi, of course you may have a copy, please just contact me via my website www.nurturewithlove.com/con... I am the only one who sees emails through the site, it is totally secure, my email address is also listed there. Kindest regards, Ani

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caninecrazy
16 Jan 2013
hi, i did mention my vit d levels to my lupus spech and she said to take over counter suppliments and NHS dont waste money checking vit d levels anymore? was given CALCEOS (calcium and vit d3 suppliment) but they made me very nauseas so didnt take again.

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Davidj
17 Jan 2013
Hi - this is David from the US, would really like a copy. I have 50,k of vitemen D, have been for quite sometime, doesn't seam to make a difference , although the aches n pains probably would be worse without it. The SLE comes with many blood lots , no vitemen k in my diet all. No green veggies. Just wondering, along with lupus what others come along with it for you ?
There sounds like a lot if work that was involved in your diet n lifestyle , thank you for your passion in helping other LUPIES !

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Ani-
17 Jan 2013
Hi David, Please email me via my website (http://www.nurturewithlove.com/contact/) and I will send you a copy of the research review paper that I compiled. It took me 8 months to read all the research papers and then write the document, but you are right - I am passionate about nutrition and about sharing the information that I have found about lupus. I am excited to continue with this project this year when I can find the time/energy! Best regards, Ani

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