Hi folks,

Before christmas i wrote that i was seeing the Lupus legend Prof G Hughes at London Bridge Hospital...

see here: lupusuk.healthunlocked.com/...

Well, he was great.

Turns out that indeed i obviously had childhood Lupus and flares of it through my life. Thankfully I an now "Sero-negative" and my WBC ( white blood cell count) has risen as it used to be low. Also he diagnosed me with Sjogrens, with Hypothyroid Disease.

So i have all the Lupus sensitivities of joints, muscle, skin, weird light bulb allergy, etc to live with and try to care for and heal as much as possible.

Also discovered I have Congenital Hip Dysplasia, been referred to the Royal Ortho Hosp, hip replacement possibly?!!

Have been prescribed Plaquenil and Levothyroxine. Also having other scans, pelvic and heart. Been passed over to the St.Thomas Lupus clinic too for yearly support.

The Prof wants to see me again in June too.

Anyhow, dunno about you peeps, but this minus zero weather hurts me.

Just couldnt take it any more, so went to visit my parents. The air feels like freezing water and even makes my lungs hurt, my hands look like they have butterfly rash over them, and the raynauds, inflamation kick in. Weather like this is just not right.!! I wish everywhere had a steady climate of a nice summertime, with only 1 week of snow at christmas ONLY!!! LOL

xFF